Confidentiality, Privacy and Consent.  

It's really important to us that you are able to give your informed consent to the services you receive with CYP-AccEPT. 

But what does that mean? 

Informed consent is where you give your permission for us to work with you. You can only truly give your permission if you know what you will be doing and how we will take care of you and your information. You also have to be of an age or ability to understand all of these details to be able to give your consent. 

This page tries to explain all of these terms so that you know about how you will be supported and can truly give your consent. 

Confidentiality

Confidentiality means that we keep all of the information you tell us, private. That means that we don't share your information with anyone outside the clinic. We won't forward any of the details you submit online to anyone, and we won't share the information you share with your wellbeing practitioner with anyone outside of the clinic. 

It is important that each of our wellbeing practitioners are able to access support from senior clinicians and supervisors within the clinic, to help them in the work that they do with you. These clinicians and supervisors are also committed to protecting your confidentiality and they will only be given the limited information that they need to know in order to support your wellbeing practitioner to provide you with the best support possible. It is also our standard practice to inform your GP that we are working with you, and when we have discharged you, so that they can help to co-ordinate your care, should you wish to see them for any additional support. We do not share the details of your experiences, just that we are working with you around whatever you would describe your difficulties as (low mood, anxiety, behavioural expression of emotion etc) 

There are very limited circumstances where we would need to share further information about your care more widely, and only with the purpose of keeping you safe. If, during the course of your work with us you tell us that you are at immediate risk of harm to yourself, others, or from others, we would need to ask for help from other agencies to support yours or others' safety. This would include your General medical Practitioner (GP), and if you are between 13-15, also your parents, unless telling them could increase your risk of harm.  If you are 16 and over we will only inform your parents with your consent. We may also include statutory services who are more able to provide specialist support for you. We would always involve you in every aspect of this process.  

If you share concerns about yours, or someone else's safety, your practitioner will discuss these concerns with the Operational and safeguarding Lead Dr Fin Williams. You can also contact either of these people via the clinic telephone number 01392 726449

A note on chaperones

We recognise that taking the first steps to work with someone who you don't yet know, can be difficult. You might find it easier to bring a friend or family member with you to your initial sessions to help you feel more comfortable. We will always remind the person who is with you about the importance of the confidentiality of the information and experiences that you share with us, and we would expect them not to talk about this with others without your permission. As you get to know your practitioner better, we would hope that if you are aged 13 and above, that your practitioner will be able to dedicate all of the session time to working with just you, so that you can get the most out of the time that you have together. It is often a great idea for you to share your work after your session with people that you trust, and who can support you to work on your goals between sessions. 

Privacy

How we collect your information

We collect information from you in a number of ways: Through the form submission on the site, and through what you tell your wellbeing practitioner. Some of these sessions may be video recorded - with your permission - to support the training and development of the wellbeing practitioner, and provide you with the best possible care. 

How we store your information 

The information that you tell us is stored as part of your care records on a secure data management system that a number of different therapeutic services use to keep records safe. Having records in a system like this is not only safe, but it helps us to keep track of the work that you have been doing with your practitioner and also keeps track of whether things have been improving. 

Your records are stored on this system in line with NHS standards. That means that they are kept for 7 years before being destroyed.

How we use your infomation

We use the information you give us to help us decide together the approaches that we use to support your wellbeing. We actively monitor whether you feel you are working towards your goals and whether your symptoms are improving. We share that information with you to help us decide whether we are working with the right approaches. 

We might also - with your permission - video record our work together. We use this in supervision so that other senior clinicians can support the work that you are doing with your practitioner. If you are working with a practitioner in training, you will also be asked whether they can use the video of your time together for an assessments of their skills. If you are ok with this, the video will always remain on the University site, and kept in a secure encrypted way, in line with NHS storage of data standards. It will only be viewed by trainers who hold the same standards of confidentiality as the clinic. 

We are a University service. That means that we support training of practitioners as well as research to help test and develop the therapies that we use in the clinic. If you opt to be part of any research opportunities, information on your progress towards your goals, or how your symptoms are improving will be used to help this research. In these cases you will assigned a unique ID, and no identifiable information about you will be held with your progress for research. That means we can see whether things are improving in the work you are doing, without knowing who you are, where you live, what school you go to, or anything else that could tell us who you are.  

Consent

Giving your consent is the same as giving your permission. 

By ticking the box at the bottom of the "I would like to work with someone" page and submitting your response, you are giving us your permission to collect, store and use your information as we have told you we will in the privacy and confidentiality statement above. 

You need to be 13 and over to be able to consent to the CYP-AccEPT services. If you are 12 and under, you need to also have a parent give permission with you. 

Contact Us

CYP-AccEPT Clinic
Sir Henry Wellcome Building for Mood Disorders Research 
Exeter university 
EX4 4QG
TEl:01392 726449 
Fax: 01392 724003
Email: cyp.accept.clinic@exeter.ac.uk

Hi, I'm Katie. I'm the team administrator for CYP-AccEPT. I'll answer the phone when you call the clinic. 

Katie Stewart

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© CYP-AccEPT, University of Exeter, 2018